MDA, the Muscular Dystrophy Association, has cut funding for programs that actually help those with a disease covered by MDA. Yet, their CEO gets paid more than the President of the United States. Here is information on this matter.
Spinal Muscular Atrophy is a degenerative, muscle disease. Researchers are claiming that a cure will come for the disease in a year. They won’t say what a cure will mean for the thousands of adults and children who have SMA.
This weekend we made $800 towards a Hoyer Lift motor and to help 12for12k.
It has been a long time in the coming, but we got a van!!! Check it out! It’s not wheelchair accessible…YET!
I am of the firm belief that on an individual basis, it does not matter what people think about you. You can’t spend your life worrying about what other people think about you or the way you live. So, do perceptions matter? I’ve come to realize that in some ways,…
In honor of the proposed bill that Massachusetts wants to pass (under the guise of protecting those who cannot protect themselves – even though there are already laws out there to protect victims ‘disabled or not’ of non-consensual sex acts) that will ban consensual acts involving either those with disabilities…
I’m taking part in Darren Rowse’s 31 Days to Build a Better Blog Challenge. It’s day one of the blog challenge and the first assignment is called ‘Writing an Elevator Pitch’. If you are interested in finding out about what Darren is doing with this project and what the first…
The Muscular Dystrophy Association has been a part of my life since I was four years old. Since so many people are saying those of us with MD should be grateful to the MDA and to Jerry Lewis, I decided to take them up on that offer and write this…
I responded to a reader email I received concerning my feelings for Jerry Lewis, who believes those of us in wheelchairs need to stay in our houses.
I’m ashamed to want to be a part of the film industry right now. The Executive Director of the Academy of Motion Pictures, Bruce Davis, responded to a letter by a group of disability rights activists. I found the letter to be extremely condescending, talking down to the activists. Furthermore,…
