As we have seen in many other individualized disabled communities, parents of kids with SMA tend to have little understanding of the lives that adults with SMA lead. For years, those of us with SMA have had to listen to parents of kids with SMA attempting to educate us about…
The MDA telethon needs to be ended for good for the benefit of all of us with neuromuscular disabilities.
People say words don’t hurt, but some words can do a lot of damage.
I have Obsessive Compulsive Disorder (OCD). I was diagnosed some years ago. I knew for years before that that I probably had OCD, but getting diagnosed validated that. One thing I struggle with is repeating. I thought it was because of my OCD, but I’ve never had that clarified for…
Disability organizations that exploit and appropriate the work of multiply marginalized disabled people need to be held accountable.
